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Events

Come and Meet Others

Please join us in Birmingham and meet  patients, caregivers and other interested people 

Saturday 30th June, 2pm – 4.30pm

Please come along, share and learn about the impact of FCS on others.  We’ll discuss tips and strategies for managing life with the restrictions it imposes.  Meeting others in a similar situation and battling the same issues can make a world of difference!

Please contact Jill if you’d like to come along.  You’re welcome to bring someone who supports you.  We look forward to meeting you!

If you would like to share the poster, you can download it (below).

 

 

 

 

Come to Leeds and meet with other patients and caregivers 

17th March 1.45pm – 4.30pm

If you’re based in reach of Leeds, come meet with other patients and caregivers.

You’re very welcome to join us – you’ll meet others who share the same restrictions and experiences as you.  Knowing that others are in a similar situation and battling the same issues can make a world of difference!

We want to hear what you think could make living with LPLD/FCS easier and we’ll tell you about a couple of new initiatives on the horizon.

Please contact Jill if you’d like to come along.  You’re welcome to bring someone who supports you.  We look forward to meeting you!

 

 

 

Report from the webinar:  When Food is the Focus

On 7th December we held an online discussion to discuss the different tips and strategies we use to manage any event where food is the focus, with an emphasis on those religious and cultural occasions where particular dishes are involved.  Here is the summary of that discussion.  To get a more readable copy, download the pdf below.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

When Food is the Focus

We’re delighted to be hosting this webinar on 7th December from 6.30pm – 7.30pm.  The webinar platform is free and easy to use.  Email Jill here to get joining instructions.  Webinars allow you to talk to other participants, to type comments and questions to be picked up by the host and other participants, or just be an observer of the proceedings.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The majority of people attending this lipid clinic have Familial hypercholesterolaemia or Familial Combined Hypercholesterolaemia so the focus of the meeting is on cholesterol lowering, but there will be useful information which some may find helpful and it’s informal so anyone can ask questions on any concerns they have
For directions on how to get to the meeting please download directions (below).

Previous Meetings

We are happy to be hosting a Patient Advisory Meeting on behalf of Akcea Therapeutics, to be held in Birmingham on 22nd April 2017. Please ring Jill on 07517 752168 or email here if you would like to attend or would like to discuss it further.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Download the flyer (below)