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For people affected by Familial Chylomicronaemia Syndrome (FCS)

What We Do


​​We raise awareness of FCS, and educate the public and health professionals about the condition.
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We advocate for excellent care and access to new medicines.
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We support people affected by FCS to lead a full, healthy and integrated life.
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We Aim To


Informed discussion with your consultant and other heath care professionals by keeping abreast of developments in the FCS world.
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The active management of the condition by increasing understanding and sharing recipes and tips.
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The full range of experiences of living with FCS
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