Raising Awareness and Building a Community

What We Do

Awareness

We raise awareness of LPLD and related conditions, and educate the public and health professionals about the condition.

We support people affected by LPLD to lead a full, healthy and integrated life.

We advocate for access to excellent care and new medicines for all patients with LPLD.

Lipoprotein Lipase Deficiency is the most prevalent of a number of ultra-rare conditions collectively known as Familial Chylomicronaemia Syndrome

Informed discussion with your consultant and other heath care professionals by keeping abreast of developments in the LPLD world.

The full range of experiences of living with LPLD and related conditions

The active management of the condition by increasing understanding and sharing recipes and tips.