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Raising Awareness and Building a Community

What We Do

Awareness

​​We raise awareness of LPLD and related conditions, and educate the public and health professionals about the condition.
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Support

We support people affected by LPLD to lead a full, healthy and integrated life.
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Advocacy

We advocate for access to excellent care and new medicines for all patients with LPLD.
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We Aim To

Enable

Informed discussion with your consultant and other heath care professionals by keeping abreast of developments in the LPLD world.
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Understand

The full range of experiences of living with LPLD and related conditions
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Encourage

The active management of the condition by increasing understanding and sharing recipes and tips.
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