For people affected by Familial Chylomicronaemia Syndrome (FCS)

What We Do

Awareness

We raise awareness of FCS, and educate the public and health professionals about the condition.

We advocate for excellent care and access to new medicines.

We support people affected by FCS to lead a full, healthy and integrated life.

Lipoprotein Lipase Deficiency is the most prevalent of a number of ultra-rare conditions collectively known as Familial Chylomicronaemia Syndrome

Informed discussion with your consultant and other heath care professionals by keeping abreast of developments in the FCS world.

The active management of the condition by increasing understanding and sharing recipes and tips.

The full range of experiences of living with FCS