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About FCS
Symptoms of FCS
More Symptoms of FCS
Diabetes and FCS
FCS and pregnancy
Diagnosis of FCS
Lipid Clinics
Genetic Testing of FCS
Research Papers
Medications for FCS
Medications to Avoid
On the Horizon
Support
Living with FCS
A Positive Approach
Tips
Food shopping
Eating Out
Holidays
General Wellbeing
Professional Support
Our Stories
Recipes
Meeting Others
Parent / Carer
Adolescence
Patient Organisations
Other – UK
Other – Europe
Other – International
Clinical Trials
Older News
What’s New
News
Get Involved
FCS Awareness Day 2019
NICE and volanesorsen
FCS Day of Action
Advocacy
Events
The FCS 10g Fat Challenge
10g Challenge feedback
Sharing Recipes
Submit A Recipe
Share Your Story
Advisory Boards
Fundraising
About US
Who We Are
Governance
Medical Advisory Board
Funding
Contact Us
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Home
About FCS
Symptoms of FCS
More Symptoms of FCS
Diabetes and FCS
FCS and pregnancy
Diagnosis of FCS
Lipid Clinics
Genetic Testing of FCS
Research Papers
Medications for FCS
Medications to Avoid
On the Horizon
Support
Living with FCS
A Positive Approach
Tips
Food shopping
Eating Out
Holidays
General Wellbeing
Professional Support
Our Stories
Recipes
Meeting Others
Parent / Carer
Adolescence
Patient Organisations
Other – UK
Other – Europe
Other – International
Clinical Trials
Older News
What’s New
News
Get Involved
FCS Awareness Day 2019
NICE and volanesorsen
FCS Day of Action
Advocacy
Events
The FCS 10g Fat Challenge
10g Challenge feedback
Sharing Recipes
Submit A Recipe
Share Your Story
Advisory Boards
Fundraising
About US
Who We Are
Governance
Medical Advisory Board
Funding
Contact Us
Privacy Policy
For people affected by Familial Chylomicronaemia Syndrome (FCS)
What We Do
Awareness
We raise awareness of FCS, and educate the public and health professionals about the condition.
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Advocacy
We advocate for excellent care and access to new medicines.
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Support
We support people affected by FCS to lead a full, healthy and integrated life.
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Lipoprotein Lipase Deficiency is the most prevalent of a number of ultra-rare conditions collectively known as Familial Chylomicronaemia Syndrome
We Aim To
Enable
Informed discussion with your consultant and other heath care professionals by keeping abreast of developments in the FCS world.
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Encourage
The active management of the condition by increasing understanding and sharing recipes and tips.
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Understand
The full range of experiences of living with FCS
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