We'll soon be changing our name to Action FCS. Look out for our new and improved website.

Clinical Trials

Always talk to your doctor first

Currently recruiting in the UK
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about a study, you or your doctor may contact the study research staff using the Contacts provided.  For general information, see Learn about clinical studies

For information about participating in clinical studies see this site from the USA CISCRP.

Have you suffered from at least one episode of LPLD/FCS-related pancreatitis?
Central Manchester University Hospital is recruiting for an open label volanesorsen study. Participation requires frequent visits and close monitoring. The study will stop recruiting by the end of December 2017.

For more details and a summary of inclusion/exclusion criteria please contact ezhil.venukumar@cmft.nhs.uk and/or bethanie.garside@cmft.nhs.uk.


The Approach Extension Study: A Study of Volanesorsen (Formerly IONIS-APOCIIIRx) in Patients With Familial Chylomicronemia Syndrome
Additional information may be found on
 Clinicaltrials.gov under study ID NCT02658175