Opportunity to add to knowledge about FCS

Study Title: A Comparison of the Natural History of Patients with and without Familial Chylomicronaemia Syndrome (FCS) What is the purpose of the study? Lack of enzymes to break down large fat particles called chylomicrons results in build-up of these particles which may have harmful consequences. The lack of enzymes is caused by genetic mutation […]
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Opportunity to join a clinical study

Have you suffered from at least one episode of LPLD/FCS-related pancreatitis? Central Manchester University Hospital is recruiting for an open label volanesorsen study. Participation requires frequent visits and close monitoring. For more details and a summary of inclusion/exclusion criteria please contact and/or
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New Resource

This new resource looks at FCS and is designed to to support both patients and clinicians in areas including FCS diagnosis, symptom management, burden of disease and treatment. It can be found on the Endocrine Society’s public education arm Hormone Health Network.   You can see it here.
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