URGENT: Patient generated survey on the burden of disease closes midnight 1st May

The FCS Foundation (FCS is the umbrella term for LPLD and its related conditions)  has created a survey for anyone living with or caring for someone who has FCS. An d result will be a report that will be published and presented to the FDA, but more exciting will be the ability to use the […]
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The End of Glybera

uniQure, the company that developed Glybera has made the decision not to pursue the renewal of its marketing authorization in Europe when it is scheduled to expire in October 25th of this year. That effectively means that the product will no longer be available commercially after that time. Please see the press release for futher […]
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