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New routes to clinical diagnosis of FCS

This paper explores the way in which clinical results can separate patients with FCS from patients with severe hypertriglyceridaemia – important when advising on treatment options and where genetic testing is hard to come by, or is very slow.   Differentiating Familial Chylomicronaemia Syndrome from Multifactorial Severe Hypertriglyceridemia by Clinical Profile : Louis St L O’Dea, James […]
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Glybera gets a second chance

This is great news for patients in Canada and then, potentially, the rest of the world. Click through to see the news report.
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European Athersclerosis Society

Rare dyslipidaemias, from phenotype to genotype to management: a European Atherosclerosis Society task force consensus statement including a detailed section on familial chylomicronaemia syndrome, symptoms and management. Download rare dislipidaemias EAS
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Biohackers and Glybera

Read this article on biohackers who claim to have made Glybera for less than $7,000.  Our Chair is quoted in the article.  Read it here
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Join a study looking at the natural history of FCS

‘A Comparison of the Natural History of Patients with and without Familial Chylomicronaemia Syndrome (FCS)’.   This is a study looking at the natural history of people in the UK with FCS. It aims to gain a full picture of the impact of the condition and is run by Dr Handrean Soran at Manchester Royal […]
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ReFOCUS study

The ReFocus study looks at the effect of volanesorsen treatment on the burden associated with familial chylomicronaemia syndrome.  You can read it here:
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Volanesorsen and Triglyceride Levels in Familial Chylomicronaemia Syndrome

Published results from the Phase 3 APPROACH study evaluating WAYLIVRA® (Volanesorsen) in patients with familial chylomicronaemia syndrome (FCS) from the August 9th 2019 issue of The New England Journal of Medicine (NEJM) are available here.    
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