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Other – UK

Patient Organisations

Genetic Alliance
Is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. It is an alliance of over 180 patient organisations..
Genetic Alliance

Rare Disease UK (RDUK)
This is the national alliance for people with rare diseases and all who support them. RDUK believes that everyone living with a rare disease should be able to receive high quality services, treatment and support.
Rare Disease UK

Genetic Disorders UK
Genetic Disorders UK’s mission is to be the leading source of information and support for both those affected by a genetic disorder, and the charities and patient groups that support them.
Genetic Disorders UK

Climb
Climb provides advice, information and support to families and professionals affected by metabolic diseases. Also funds research.
Climb