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Other – Europe

Rare Disease and Advocacy

EURORDIS – European Rare Disease Organisation
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 724 rare disease patient organisations in 63 countries covering over 4,000 diseases.

European Patients’ Academy on Therapeutic Innovation
The consortium project “European Patients‘ Academy on Therapeutic Innovation” (EUPATI), funded by the Innovative Medicines Initiative,  provides scientifically reliable, objective, comprehensive information to patients on medicines research and development. It’s aim is to increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees.
European Patients’ Academy on Therapeutic Innovation

EUPATI Toolbox
The A-Z of how medicines are developed.
EUPATI Toolbox