Living with FCS can be very isolating. There is little understanding of the condition and the impact it has on the lives of those affected.
The following pages are written from the perspective of eating less than 10g fat per day and are written by Jill Prawer who founded the charity. They are the product of a lifetime’s experience of struggling with the condition, with varying degrees of success. Some of the suggestions will seem too limiting for those who can tolerate more fat and everything here is offered tentatively. We all have to find our own way of managing the restrictions that suit our lives, our personalities and our cultures.
With the creation of online communities and the opportunity to meet other patients living with FCS Jill has found that her life has become easier. She has found that learning about how others manage the condition has offered new perspectives and opened her up to new experiences.
Share Your Experience
If you have anything to offer from your experience that is not covered in these pages, please email us here.