LPLD Alliance has a Medical Advisory Board and is keen to involve health professionals with an interest in LPLD/FCS.
We are also keen to develop a Patient Advisory Board.
Advisory boards will ‘meet’ for a conference call two or three times a year. Their role is to give the healthcare profession/patient perspective, and to guide the charity’s future direction..
If you are interested in being a part of an Advisory Board, please email us for further details stating which you are interested in joining.
You can email us here