Who We Are
Jill Prawer: Founder and Chair
Jill was diagnosed with LPLD aged two and has learned to live with the condition after many years of trying. She has three children. In 2012 she set up the LPLD community on RareConnect. She qualified as a counsellor in 1994 and has worked for a variety of charities in a project management and support capacity. She currently works as a patient engagement officer (primary care) at Healthwatch Central West London. She is a Fellow of the European Patients Academy on Therapeutic Innovation (EUPATI) having successfully completed its course on the medicines research and development process.
Pat Wade (A.C.I.S): Honorary Treasurer
Pat was diagnosed with LPLD in her late teens after suffering from the condition since birth with frequent bouts of pancreatitis. Three children and many years later she manages to stay largely symptom free, but not without the daily struggle with the diet.
Pat retired in 2015 following a career as a qualified company secretary providing professional advice and support to many boards of directors and their committees, largely in the financial sector.
Helen Aderin: Trustee
A former University Lecturer, Helen Aderin is a Counsellor, Supervisor and Trainer. Since setting up a counselling service for adults with learning difficulties in the 1990’s she has served as a director on a number of boards including property companies and a charity.
Catherine Brun: Trustee
Catherine was diagnosed with LPLD at birth and has followed a strict, sub-10g diet since then. She has led a healthy life, including a long period abroad, helped by strong family support. A career in finance has played an important role in her life and has led her to travel extensively, finding the dietary restrictions at times challenging. She is particularly interested in the psychological repercussions of the condition and in helping others deal with the frustrations it inevitably entails.