Who We Are
Jill Prawer: Founder and Chair
Jill was diagnosed with LPLD aged two and has learned to live with the condition after many years of trying. She has three children. In 2012 she set up the LPLD community on RareConnect. She qualified as a counsellor in 1994 and is a Fellow of the European Patients Academy on Therapeutic Innovation (EUPATI) having successfully completed its course on the medicines research and development process. She is a a trustee of LDUK, a charity for people who have lipodystrophy.
Pat Wade (A.C.I.S): Honorary Treasurer
Pat was diagnosed with LPLD in her late teens after suffering from the condition since birth with frequent bouts of pancreatitis. Three children and many years later she manages to stay largely symptom free, but not without the daily struggle with the diet.
Pat retired in 2015 following a career as a qualified company secretary providing professional advice and support to many boards of directors and their committees, largely in the financial sector.
Krish Patel: Trustee
Krish was diagnosed with LPLD at birth and has struggled to manage her condition. She has had recurrent hospital admissions. Through the support of her family and her doctors, she is now a qualified GP and uses her own experiences as a patient to empathise with her patients and provide support for them through their hardships.
Rebecca Sanders (PhD): Trustee
Rebecca has been a research scientist in the field of molecular biology for over nine years. She is also the Chair of LDUK a charity for people who have Lipodystrophy, and is involved in various activities related to patient advocacy, education and awareness.
Lucia Tambini: Trustee
Lucia is a documentary film maker and camerawoman and has spent over 15 years in television news, including time spent working in ITN’s Health Bureau. She also has a small production company Lapwing Films which makes films for charities and NGO’s. Recently Lucia has worked with Oxfam, Shelter and SeeAbility. She has often filmed in hospitals working with patients to tell their stories.